Very few centers are devoted to treating arthrogryposis. By centralizing state-of-the-art techniques, the Center for Children Arthrogryposis Center provides an alternative for patients who travel to different locations for treatment. This multi-disciplinary clinic integrates a variety of services from the Hospital for Joint Diseases and the Rusk Institute of Rehabilitation Medicine. Through this clinic, each child is evaluated by a team consisting of a pediatrician, neurologists, orthopaedic surgeon, geneticist, and physical and occupational therapist.
Arthrogryposis does not describe a single diagnosis, but a spectrum of congenital deformities. While more than 150 conditions have been identified with this disorder, common symptoms include multiple joint contractures, poorly developed and contracted muscles, and limb deformities. Depending on the severity, patients may not have the ability for such common tasks such as walking independently or sitting up.
The Arthrogryposis Center's treatment philosophy focuses on the individual patient. In order to prevent irreparable deformities, treatment may include:
- A daily physical therapy program
- Surgical intervention
- Ilizarov external fixator